Resources

Helpful resources for navigating acquired HO

Girl sitting and holding a book in soccer-themed bedroom. Actor portrayal.
Actor portrayal

Watch Lainey's story

Hear more about her diagnosis and experience living with acquired HO.

Lainey's Story Video

Lainey’s Story

Father and daughter smiling and looking at each other. Actor portrayals.

Connect with a Rhythm InTune Patient Education Manager*

A Rhythm InTune Patient Education Manager can provide one-on-one educational support and help you connect with a community of other individuals living with acquired HO.

Patient Education Managers are employees of Rhythm Pharmaceuticals and do not provide medical care or advice. We encourage you to always speak to your healthcare providers regarding your medical care.

Looking for more information about acquired HO?

Sign up to get emails with information and updates about acquired HO delivered to your inbox.

Sign Up

Additional educational support

The Raymond A. Wood Foundation is a parent- and patient-led rare disease advocacy organization dedicated to improving the lives of individuals affected by craniopharyngioma and other hypothalamic-pituitary brain tumors. RAWF’s mission is to advance research and advocate for treatment outcomes that enhance quality of life for survivors, including those living with hypothalamic obesity caused by tumor growth or treatment.

Through education, support, and collaboration, RAWF empowers patients and caregivers to access evolving therapies and connect with a supportive global community.

Raymond A. Wood Foundation logo